Thursday, August 13, 2009

feeling the burden of perfection

I returned to work full-time yesterday. I received a phone call on Monday evening from my disability services informing me that my oncologist had released me to return to work. I was unaware of that. So, I came into the office yesterday and hung out all day. By the end of the day I was tired, but not so badly that I couldn't make it home okay. And I crashed as soon as I got in the house.

I definitely am stronger now than I was a few weeks ago when I tried to return. But I do sense that it will still be a bit of a struggle to fully transition into work. Like right now, its still morning and I am wishing I was back in bed. Getting up early has never been a favorite thing to do.



I am feeling particularly burdened today. Partly attributable to a book that I'm reading (one of the characters is a little boy dying of leukemia -- ugh cancer strikes again) and partly attributable to the fear that I may not be able to handle all of the responsibilities that I have at work.

My work isn't particularly challenging on an intellectual level, but it does require a level of dexterity in dealing with a variety of personalities, shifting priorities and deadlines... all with a smile. If you know me, you're aware that I do not have a poker-face. Whatever I'm thinking or feeling shows up on my face. I don't "fake" very well. But, like everyone else in the world, sometimes you have to be what someone else needs you to be rather than what you may want to be. I do not have the luxury of not working. I have been really blessed and fortunate that I was able to be out on disability for as long as I was. But reality has struck and my bills are piling up in a serious way. I have to be ready for full-time work because my life requires my full-time pay. (and then some)

Its funny dealing with a major illness in a work environment. I am not the employee who tends to share a lot of personal business at the office. Usually because being the single, childless woman at work gives people the impression that you have no worries in your life. Rather than apologize for my life and my lifestyle, I stopped sharing who I was at work a long time ago. And it has worked for me for many years. But now I am being told that I have to share some sort of explanations about what I may be feeling in order to balance expectations in the office. At the same time, I am told that I should not feel burdened to share too much of my personal medical issues with my colleagues.

Seems like I am in the proverbial hard place. They want to know what they feel they need to know to understand what I'm dealing with (as it affects them) but they don't want to know too many details (I suppose to protect my privacy and probably to ease their minds too). The less you know, the less you're responsible for.

It will be a challenge to balance those two objectives. Tell them a little, but not too much. Try hard to be what they need, but not at the risk of my own health. Stay tuned in to what you need for yourself while balancing what they need at the office. And all so that you can keep getting that paycheck.

Sigh.

...and while I'm sighing... why is our new office right down the block from McDonalds? (laughs)

I was warned that transitioning back into my life could be difficult and emotional. Today I understand that acutely. Not sure who I can talk to about this though but I may need to work through my emotions surrounding this. I am terribly aware that my life is different, that I am different. I feel very burdened that I am not the me I used to be.

As frightening as it all was in the beginning -- going to the hospital every few days for this or that -- the routine of seeing people who were responsible for my care became a real comfort. They are very smart and well-trained people who know what to do to handle my illness. While its new to me, its not new to them. I rested easy because I felt like I was in good hands.

Now that the burden of care is falling back on my own shoulders, I'm afraid. I don't know what I'm doing. I have never cared for anyone with cancer (laughs). I have never had cancer before. I am unsure when I should push myself and when I should give myself a break. There's so much information out there -- I read no less than 5 articles every day about breast cancer -- and it all conflicts with each other. What I read on Monday will probably be refuted in another article two weeks later.

Its overwhelming at times. Its days like this when I am not happy with being single. Today is a day that a good bear hug would make me feel better. But that's not likely to happen. (shrug) So instead, I will bury my nose in this book and get caught up in the adventure of finding the "living blood" that may save the little boy from his blood cancer.

I wish somebody could save me.

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